Personal HFS History - Vanessa McGehee
I have suffered with Hemifacial Spasm (HFS) for the past few years. I have seen numerous doctors from the family doctor to neurologists to chiropractor to neurosurgeons. I've heard that I've had a stroke, it's nerves, it's a vitamin deficiency, a brain tumor and finally HFS. It's been a ride that's for sure. I finally found someone who knows what it is but he's only done Microvascular Decompression (MVD) surgery a couple of times.
I tried Botox® by two different doctors two years ago and decided it wasn't worth it since it wasn't helping. So now, I have just about decided on the MVD but finding a doctor is another matter. The twitching in my left eye stopped for awhile then started back up several times and the past year or so has been non-stop. Now we are at the mouth pulling and facial distortions.
I know it won't be long before I decide on the surgery but I have to find the doctor. My HMO will not let me go out of state so I will have to stay in Louisiana. Another Hemifacial Spasm Association member suggested a doctor in Shreveport and I am presently looking into this.
Permission granted the HFSA to post Personal HFS History on website.
Vanessa McGehee, October 08, 2002
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