Sent by:      Paula Hiltz , Halifax, Nova Scotia (Canada)
Sent to:      Hemifacial Spasm Association (HFSA) E-mail Group
Date:          September 24, 2007
Subject:     This has been a wonderful year

This has been a wonderful year, I had my surgery, November 15 2006 and after surgery my spasms were much milder. About the first of the year they totally disappeared. So needless to say it has been a good year. I like going out, I love to smile and meet new people. Previous to surgery, as we all know, HFS causes you to want to stay at home and not bother talking or meeting others. I generally went about my business all through the years with my HFS, but many times I was reluctant to do things. Now it is easy, I have my life back in control and it makes me really, really appreciate my life. I know HFS is not a life threatening disease but it is very debilitating to those of us who have it. This group has been a wonderful place for me on my journey without this group and without Dr Kaufmann I would still have spasms.

To those of you just joining the HFSA, please read all you can on this disease. Read all the histories, the diaries and get the DVD from the HFSA though Jack. There is just so much information on the DVD's and this website. No one should have to suffer with HFS. Before you can figure out how you want to treat the spasms though you have to know what treatments are available, the pluses and minuses of each treatment, then you will be able to make a proper decision.

There are so many knowledgeable people on this website that can answer questions. Please post your questions and don't ever think that your question is stupid. There are many things about this disease that can be different for each of us, so we all may have different concerns. HFS is a relatively rare disease so it is often difficult to get information on it.

Thanks everyone, for being such a caring group.

Permission granted the HFSA to post E-mail message on website.
Paula Hiltz, September 24, 2007

 

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